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Greg Evans
Apr 20, 2018
Remember back in the summer of 2014 when everyone was pouring buckets of ice cold water on their head as part of a viral trend?
It was all part of the ALS Ice Bucket Challenge, which was initially aiming to spread awareness and raise money for motor neurone disease, also known as ALS.
The challenge started off in good faith but, with all trends, it soon got out of hand and had its critics.
Now that it's all behind us, it's time to reflect on the good that the movement did - especially for the man that helped create it, Patrick Quinn.
It's unlikely that you would have heard of Patrick before but his efforts as the founder of the challenge helped the challenge become a huge success and raise millions in funding for research.
Sadly, Quinn lost his voice in 2017, which is, unfortunately, one of the most frequent symptoms of the disease.
Quinn had been forced to speak through a computer, not dissimilar to that used by Stephen Hawking.
Yet, amazingly, through state-of-the-art technology Quinn has managed to regain his voice thanks to a cloning technique created by Project Revoice.
By using smaller clips of Patrick delivering speeches in the past, they were able to replicate his voice digitally. Watch a small documentary about the process below.
In a Facebook post, Patrick explained just how Project Revoice has dramatically altered his life and how he plans to help other ALS sufferers gain access to it.
He wrote:
I am beyond honoured to be the first to receive my voice back, but most importantly, I can't wait to see ALS patients all over the world utilise Project Revoice.
It's had such an incredibly positive effect on my life. Prior to this, I avoided communication at all costs.
I would have people stand behind me or would simply not communicate at all. That has all changed now!! This is way beyond anything that is currently available.
I plan on doing everything I can from my end to help get this to ALS patients everywhere!
Nothing in ALS is fast enough when people are dying every day, but I joined this project knowing that future patients lives could be changed for the better.
ALS takes and takes and takes. Well, it's time we took something back!!
HT USA Today
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